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Louisiana

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sl8

(16,280 posts)
Thu Dec 5, 2019, 07:23 AM Dec 2019

Baby denied life-saving drug by Louisiana Medicaid [View all]

From https://www.wbrz.com/news/baby-denied-life-saving-drug-by-louisiana-medicaid/

Baby denied life-saving drug by Louisiana Medicaid

December 02, 2019 7:18 PM in News
Source: WBRZ
By: Brittany Weiss

BATON ROUGE - The most expensive drug in the world could be a possible cure for a 16-month-old boy.

Axel Dennis was diagnosed with Spinal Muscular Atrophy Type 1 at five weeks old. SMA is a genetic disease the affects muscle movement. Axel's mother, Andrea James, says her son's muscles aren't getting messages from his brain.

[...]

Earlier this year, the FDA approved Zolgensma for children with SMA under the age of two. The infusion halts the disorder in its tracks and doesn't allow it to progress further. The single-dose drug has been praised by the SMA community but it's incredibly expensive at more than $2 million.

Axel's Louisiana Medicaid has refused to cover the cost.

[...]



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