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peggysue2

(11,520 posts)
31. My sister's partner came to the same crossroad
Wed Feb 21, 2024, 12:01 AM
Feb 2024

He called me and asked for advice, guidance. It was a painful conversation but he had done everything for my sister, was the best partner she could have ever had--loving, kind and extraordinarily gentle. Still, he was at the end of his rope. The moment came when the disease was simply overwhelming. He had help but any help is temporary in nature and my sister had become violent and really a 24/7 project. There was little sleep, constant threats and just endless chaos.

I told him that he would do my sister no favors if he fell apart physically or emotionally. She was definitely at the stage where a facility geared toward late-stage Alzheimer's was appropriate, necessary for her well-being and his.

He found a facility about 30 minutes from their home which meant he could visit everyday, nearly 'round the clock. She was well taken care. She died 10 days later.

I've been a caretaker. I know how unbelievably difficult it is, how utterly exhausting. I think for all of us in similar situations, we end up making a personal decision about the care we can give, maintain and continue which truly benefits the patient in our care and our own endurance.

It's really hard. I'm so sorry you're going through this. Just know that whatever decision you ultimately make, there are no judgments at the end. It's a matter of what's best for your husband as well as yourself.

Sending blessings in your direction.

Recommendations

3 members have recommended this reply (displayed in chronological order):

I'm so sorry you're going through this. I'm sure spooky3 Feb 2024 #1
Thank you....... a kennedy Feb 2024 #2
You have to make the best decision for him...and you. brush Feb 2024 #4
He has been on some medication for early onset......but his Dr has taken him off of it. a kennedy Feb 2024 #6
Sorry. A home might be the best place. No need for both of you to suffer. brush Feb 2024 #8
the medicine has marginal benefit, and only very early on NoRethugFriends Feb 2024 #32
My friend's husband had dementia and got MOMFUDSKI Feb 2024 #3
Yes, it'll only get worse and I know that.......i'm just sick. All I do is cry. a kennedy Feb 2024 #5
Please take care of yourself... deRien Feb 2024 #10
Sending you a promised prayer and my heartfelt love for you both. sprinkleeninow Feb 2024 #21
I understand, to some degree, what you are going through. MLAA Feb 2024 #7
Thank you, he isn't the man he was......and I know he'll change, he is pretty a kennedy Feb 2024 #11
DM me anytime you just want to share your thoughts or need a shoulder. MLAA Feb 2024 #18
I think you already know what the correct decision is. Working yourself niyad Feb 2024 #9
♥️ ♥️ ♥️ a kennedy Feb 2024 #12
I'm so sorry you and your husband are going through this woodsprite Feb 2024 #13
Thank you. a kennedy Feb 2024 #15
I am sorry you have to go through this. Gore1FL Feb 2024 #14
It's already been a huge undertaking......I hope I can handle it. I just cry to much. a kennedy Feb 2024 #16
We are all here if you want to talk. Nt spooky3 Feb 2024 #40
That's a tough decision drmeow Feb 2024 #17
I have FTD Omaha Steve Feb 2024 #19
I'm in the same situation HighFired49 Feb 2024 #20
Holding you in my heart. What would he have wanted for you? n/t TygrBright Feb 2024 #22
Bring him home. Laura PourMeADrink Feb 2024 #23
it's her decision, why would you give her an order? NoRethugFriends Feb 2024 #34
Order? Wow thats quite a stretch. My mom and sister Laura PourMeADrink Feb 2024 #39
Respectfully... AmBlue Feb 2024 #42
Of course. Not sure what i said to imply no support. Yikes Laura PourMeADrink Feb 2024 #43
Sometimes the Caregiver is the one who needs care the most. Don't forget about you. Deuxcents Feb 2024 #24
Oh Dear, I really understand. I work full time as well as being the full time caregiver for my Ziggysmom Feb 2024 #25
Is there an option of having in home help? oldmanlynn Feb 2024 #26
I'm sorry you are going through this. cate94 Feb 2024 #27
If you or your husband are combat veterans, Korea, V.N. or wherever, 3Hotdogs Feb 2024 #28
I faced this with my parents tosh Feb 2024 #29
We kept our parents in their apartment with around the clock care applegrove Feb 2024 #30
My sister's partner came to the same crossroad peggysue2 Feb 2024 #31
Family strengthened with support Dear_Prudence Feb 2024 #33
You did the right thing. When loved ones get to his stage, it is dangerous to be home alone with them. SunSeeker Feb 2024 #35
I'm so sorry AmBlue Feb 2024 #36
Bless you. My wife died three years from Alzheimer's. I know what you're going through. demosincebirth Feb 2024 #37
It depends whether they can live at home without harm to themselves or others. no_hypocrisy Feb 2024 #38
Whatever you choose, Elessar Zappa Feb 2024 #41
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