gonna post this here,,

[kozar]

I dont really wanna put it in GD, I had a huge post few days ago on GD regarding Tess. Welp,,things kinda changing again.

Her weight has be such an issue,,she has been between 85 -90 pounds for like ever. while we were still in TN,,she started vomiting and went to 63 pounds in 3 weeks. I got here in Fla with our move and she went back to 71. Now this last week,,she can eat fine,,but when she drinks,,,nope ,comes right back up. doesnt make a lot of sense to what I know in my history working with hcp people as she is still peeing and pooping well. My first thought would be a stricture,or her scoliosis blocking something,,but in and out all working. WE have been talking to her Dr in Bristol,,he has taken care of Tess her whole life. HE has been speaking with Univsty of Fla and sending records and making plans on what it could possibly be and what tests will be run.
First off,,these professionals have been incredible, we thought Tess was going today ,but they said ,no.. tomorrow we are still waiting on a few records and want a plan so she can wheel in and go straight to a pvt room and minimize any unnecessary exposures, we all know what that exposure would be.they have already run all her insurance,we have e- signed what docs we could. Tehy have all been incredible.
So back to plan ,,we all fairly agree that her blood work is checked regularly. And other than Synthroid,,which has taken minor adjustments along the years,,blood prolly gonna look good. so the back and forths now are something a bit more invasive is the next logical step. We all seem to be agreeing on a stomach scope right now as a starter. Edited to add ,,I am restricting her to 1 ounce of liquids with a 15 minute wait between,,seems to help a bit today

Anyway,,please keep her in your thoughts, could just be Gods plan. But after I was a bit huffy the other day,,I wanted to make an honest post about her and ask for good vibes.. But I wanted to share a story of how healthcare truly should work and publicly thank these professionals.


Koz