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Cancer Support

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murielm99

(31,568 posts)
Thu Dec 14, 2023, 11:18 AM Dec 2023

I am not dead yet. [View all]

Things were going great. The radiation oncologist who was in charge of the stereotactic radiation was pleased. The tumor was small and almost gone. It was probably dead tissue. He had moved my appointments to every six months.

I asked him about the small amount of blood in my sputum. He told me to speak to my pulmonologist, who would probably tell me there was nothing to worry about. Instead, she got all up in arms and scheduled a THIRD bronchoscopy for me. For the first time, I was frightened before the procedure. I woke up sick, running a temp, a mess. She offered to keep me overnight. I declined. I wanted go home.I had bounced back from the first two with none of this.

She said there was blood behind and under the disappearing tumor that everyone was pleased to see leaving my life.

I went home. The next thing I knew, the hospital was calling me because my left lung was filling with fluid. They tried to get it out, but most of it was too thick. A nice older woman doc explained to me that the body would probably wall that off. In the meantime, the lower part of my left lung does not work.

I had an appointment with my primary, who is great. I told her that I had an appointment with the pulmonologist on the 20th. I would probably ask for a referral from my wonderful cancer center doctors to another pulmonologist. I like and trust the team there. If I have to go outside the practice for this, they will help and support me.

The chemotherapy doctor at the cancer center will be gone for a month. The cancer center has given me an appointment with a locum, who will be there for the regular doc for a month. The two work well together and trust each other. I can't tell you how glad I am that I found this cancer center.

I am not going to sit here and die. If this cancer center that I like and trust does not help me someone else will. I am not going to die without further treatment and without a fight. Heck, I have an acquaintance in my community who is fighting his fourth form of cancer. If he does not give up, neither will I.

I love you guys for all your support and help.

I don't know if any of you have experience with this kind of song and dance, but that is not why I come here. I have plenty of medical advice, I think. Thanks for listening.

49 replies = new reply since forum marked as read
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I am not dead yet. [View all] murielm99 Dec 2023 OP
You've got the right attitude, Murialm99! OAITW r.2.0 Dec 2023 #1
I have been wondering how you are. The lung issue is scary, but the rest of it sounds like there is Scrivener7 Dec 2023 #2
If it helps you for us to listen I am more than happy to do so. We want to help and feel helpless, so... hlthe2b Dec 2023 #3
I'm happy to read this spirited post today. 3catwoman3 Dec 2023 #4
Love your spunk! MOMFUDSKI Dec 2023 #5
I'm so happy to hear from you! Goddessartist Dec 2023 #6
That is the right attitude! I love you, muriel; you are an inspiration to us all. brer cat Dec 2023 #7
I have loved your presence here over the years William769 Dec 2023 #8
Thanks for letting us know mgardener Dec 2023 #9
This pulmonologist has very poor ratings. murielm99 Dec 2023 #10
Time to find a new pulmonologist, it seems. TwilightZone Dec 2023 #40
! Solly Mack Dec 2023 #11
Stay strong, Murielm99 momta Dec 2023 #12
So glad to hear you are still fighting the good fight, Muriel! Trueblue Texan Dec 2023 #13
Sending you good wishes for successful treatment. Lonestarblue Dec 2023 #14
Keep fighting, you're an inspiration... MiHale Dec 2023 #15
She IS! nt tazkcmo Dec 2023 #18
Sending you 💕 & hugs Chicagogrl1 Dec 2023 #16
Kick some cancer butt! tazkcmo Dec 2023 #17
! bucolic_frolic Dec 2023 #19
So encouraging to read this.. I remain mountain grammy Dec 2023 #20
I dont know you but I know you Janeyre Dec 2023 #21
Welcome officially to our DU family. niyad Dec 2023 #23
Thank you so much. Have Janeyre Dec 2023 #32
Glad you decided to come in from the cold. niyad Dec 2023 #33
Welcome to DU LetMyPeopleVote Dec 2023 #49
Huggggggggs. Holding you in light and love. I am so glad that you have such niyad Dec 2023 #22
Happy to hear you are still with us. virgdem Dec 2023 #24
I hope your locum realizes palliative care needs to be started early Warpy Dec 2023 #25
This is not medical advice. EndlessWire Dec 2023 #26
GOOD!!! calimary Dec 2023 #27
Thank you for keeping us informed LetMyPeopleVote Dec 2023 #28
That's the spirit! You are needed around here. onecaliberal Dec 2023 #29
Make your own decisions about your health! TNNurse Dec 2023 #30
💙Love you, Muriel.. you are such a Cha Dec 2023 #31
Very good news Wild blueberry Dec 2023 #34
Thank you for posting this and I will include you in my Mi Sheberach mucifer Dec 2023 #35
Thanks for the update Muriel. Sounds largely positive, but hopefully the fluid can be dealt with soon. Evolve Dammit Dec 2023 #36
... Skittles Dec 2023 #37
Still praying for you beating this! summer_in_TX Dec 2023 #38
I root for everyone here IbogaProject Dec 2023 #39
You're an inspiration! stage left Dec 2023 #41
On your side, muriel... glad you're staying strong, and wishing the best possible news at every turn JudyM Dec 2023 #42
Yes! Good to hear Muriel !! V850i Dec 2023 #43
God Bless you! emmacom Dec 2023 #44
Dear one, murielm99 Dec 2023 #45
(((Murielm))) salin Dec 2023 #46
Best of luck DownriverDem Dec 2023 #47
Absolutely the right thing to do. barbtries Dec 2023 #48
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