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Cancer Support
In reply to the discussion: I am not dead yet. [View all]EndlessWire
(7,342 posts)26. This is not medical advice.
Have you tried bispecific antibody therapy? You have to account for cytokine release syndrome (CRS). Everything I have read shows promise for this therapy. It is a longer treatment, and you should take all of it.
I support you and pray for the best. You know, if I were a pulmonologist and found out my patient was spitting up blood, I'd do a bronch, too. But, faith in your team is paramount for winning, and I think you are doing the right thing in changing up. It becomes a second opinion, which is always good investigatory technique. The doc should not be offended.
Best of luck to you. You're in it to win it!
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I have been wondering how you are. The lung issue is scary, but the rest of it sounds like there is
Scrivener7
Dec 2023
#2
If it helps you for us to listen I am more than happy to do so. We want to help and feel helpless, so...
hlthe2b
Dec 2023
#3
That is the right attitude! I love you, muriel; you are an inspiration to us all.
brer cat
Dec 2023
#7
Thanks for the update Muriel. Sounds largely positive, but hopefully the fluid can be dealt with soon.
Evolve Dammit
Dec 2023
#36