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Cancer Support

In reply to the discussion: I am not dead yet. [View all]

emmacom

(25 posts)
44. God Bless you!
Fri Dec 15, 2023, 03:05 AM
Dec 2023

Dear One, May God continue to bless you I Celebrate your fight; I celebrate your Life!
Sadly, I am not so lucky. My 80th birthday present was a diagnosis of adenocarcinoma. That was 14 months ago. My 81st birthday present is the refusal, so far, of the medical profession to try to find a way to treat me before it is too late, which may already be the case.
I have a severe allergy to iodine, which limits the information that present-day scans can provide. Okay. Now add a severe back and neck work injury years ago, including an upper back fracture and curvature and nerve damage to my neck (as well as several herniated disks with progressive nerve damage lower down.) I do have a DNR, but evidently that is not honored when one undergoes surgery. (No, I do not understand that either.) Then add the refusal of the anesthetists to use any means of resuscitation other than chest compression should I stop breathing (which may happen as I must take opioids for pain). The compressions would, however, break ribs and very possibly do further damage my neck and upper spine, leaving me in worse pain, should I live, and in a present-day legal situation in the United States, in which physicians are afraid to provide adequate pain medication to those who are in legitimate need. I would be better off dead. So, I am as yet untreated at all.
I have not stopped pursuing help and there is one surgeon, in a large city over an hour from me, who will at least talk to me--if I can find a way to get there. I no longer drive and have lost my assistant due to severe illness of her own and I have, as yet, been unable to replace her.
I am neither crying nor giving up, If nothing more, perhaps I can move compassion and care for disabled persons ahead one notch. (there is more regarding the lack of care available to me as a disabled person, but I will spare you that here.) So. Please know how very blessed you are! Do not ever give up! Being older is not a reason to be left to die. Neither is a disability. Life is precious for however long it lasts and you are able to do more than just exist.
If you wake in the morning, the rest of the day is a present! I send you love and joy. YOU GO GIRL!

Recommendations

1 members have recommended this reply (displayed in chronological order):

I am not dead yet. [View all] murielm99 Dec 2023 OP
You've got the right attitude, Murialm99! OAITW r.2.0 Dec 2023 #1
I have been wondering how you are. The lung issue is scary, but the rest of it sounds like there is Scrivener7 Dec 2023 #2
If it helps you for us to listen I am more than happy to do so. We want to help and feel helpless, so... hlthe2b Dec 2023 #3
I'm happy to read this spirited post today. 3catwoman3 Dec 2023 #4
Love your spunk! MOMFUDSKI Dec 2023 #5
I'm so happy to hear from you! Goddessartist Dec 2023 #6
That is the right attitude! I love you, muriel; you are an inspiration to us all. brer cat Dec 2023 #7
I have loved your presence here over the years William769 Dec 2023 #8
Thanks for letting us know mgardener Dec 2023 #9
This pulmonologist has very poor ratings. murielm99 Dec 2023 #10
Time to find a new pulmonologist, it seems. TwilightZone Dec 2023 #40
! Solly Mack Dec 2023 #11
Stay strong, Murielm99 momta Dec 2023 #12
So glad to hear you are still fighting the good fight, Muriel! Trueblue Texan Dec 2023 #13
Sending you good wishes for successful treatment. Lonestarblue Dec 2023 #14
Keep fighting, you're an inspiration... MiHale Dec 2023 #15
She IS! nt tazkcmo Dec 2023 #18
Sending you 💕 & hugs Chicagogrl1 Dec 2023 #16
Kick some cancer butt! tazkcmo Dec 2023 #17
! bucolic_frolic Dec 2023 #19
So encouraging to read this.. I remain mountain grammy Dec 2023 #20
I dont know you but I know you Janeyre Dec 2023 #21
Welcome officially to our DU family. niyad Dec 2023 #23
Thank you so much. Have Janeyre Dec 2023 #32
Glad you decided to come in from the cold. niyad Dec 2023 #33
Welcome to DU LetMyPeopleVote Dec 2023 #49
Huggggggggs. Holding you in light and love. I am so glad that you have such niyad Dec 2023 #22
Happy to hear you are still with us. virgdem Dec 2023 #24
I hope your locum realizes palliative care needs to be started early Warpy Dec 2023 #25
This is not medical advice. EndlessWire Dec 2023 #26
GOOD!!! calimary Dec 2023 #27
Thank you for keeping us informed LetMyPeopleVote Dec 2023 #28
That's the spirit! You are needed around here. onecaliberal Dec 2023 #29
Make your own decisions about your health! TNNurse Dec 2023 #30
💙Love you, Muriel.. you are such a Cha Dec 2023 #31
Very good news Wild blueberry Dec 2023 #34
Thank you for posting this and I will include you in my Mi Sheberach mucifer Dec 2023 #35
Thanks for the update Muriel. Sounds largely positive, but hopefully the fluid can be dealt with soon. Evolve Dammit Dec 2023 #36
... Skittles Dec 2023 #37
Still praying for you beating this! summer_in_TX Dec 2023 #38
I root for everyone here IbogaProject Dec 2023 #39
You're an inspiration! stage left Dec 2023 #41
On your side, muriel... glad you're staying strong, and wishing the best possible news at every turn JudyM Dec 2023 #42
Yes! Good to hear Muriel !! V850i Dec 2023 #43
God Bless you! emmacom Dec 2023 #44
Dear one, murielm99 Dec 2023 #45
(((Murielm))) salin Dec 2023 #46
Best of luck DownriverDem Dec 2023 #47
Absolutely the right thing to do. barbtries Dec 2023 #48
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