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Chronic Health Conditions Discussion and Support

Thinkingabout

(30,058 posts)

2. Yep, they want to charge $2500 per injection but settle for $1200. I also get weekly blood test to

Reply to Warpy (Reply #1)

Sun Sep 1, 2013, 05:34 PM

Sep 2013

See what my levels are. My high has been 173,000 and the low was 24,000. I have not met anyone else with this condition and still puzzled but make the best. My doctor tells me I probably had a virus at some time and the virus mimicked my small platelets so my immune system kills the small platelets in the spleen and ergo the low platelet count.

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Does anyone have ITP, immune thrombocytopenic purpura, or low blood platelets? [View all] Thinkingabout Sep 2013 OP

I only know it's very treatable Warpy Sep 2013 #1

Yep, they want to charge $2500 per injection but settle for $1200. I also get weekly blood test to Thinkingabout Sep 2013 #2

Years ago I was diagnosed with ITP Idiopathic Thrombocytopenia. Different from what you have auntAgonist Sep 2013 #3

Thanks for your reply, prednisone is really not an option for me since I am also diabetic. Thinkingabout Sep 2013 #4

Has your Dr discussed removing your spleen auntAgonist Sep 2013 #5

We have discussed removing the spleen but since I am responding to NPLATE we are Thinkingabout Sep 2013 #7

I wish you well. The cost would bury me I'm afraid. auntAgonist Sep 2013 #8

Fortunately I have medical insurance which is covering most of the cost, or at least they are Thinkingabout Sep 2013 #9

I did a bit of reading up on it and it looks like 'your' ITP and mine are the same thing. n/t auntAgonist Sep 2013 #6

Had a few episodes of it years ago as a result of arthritisR_US Nov 2013 #10

Thanks for your post. My ITP is not result of Chemo. I read the other day they are Thinkingabout Nov 2013 #11

The chemo and radiation totally screwed up my arthritisR_US Nov 2013 #12

I had heard about essiac tea some years back, think i will check into it. My lowest Thinkingabout Nov 2013 #13

I woke up the first morning and couldn't separate arthritisR_US Nov 2013 #14