Chronic Health Conditions Discussion and Support

2theleft

(1,137 posts)

5. I had never heard of that until recently when I learned..

Reply to DeadLetterOffice (Original post)

Wed Apr 29, 2015, 10:03 PM

Apr 2015

a lady that works for me has it. She has a mild case (I can't remember if the right name for her type) fortunately, but talking to her, I really feel for you and your daughters. She said there was one one benefit...a super easy delivery since the tendons and such stretch so much... She is also lucky in that she didn't pass it on to her daughter.

I'm glad you have a diagnosis and your doctor is going to learn about it. Are there specialists for it? If you want, pm me. I would be happy to ask my coworker any questions you might have of someone who actually has it.

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Newly diagnosed with Ehlers-Danlos Syndrome... [View all] DeadLetterOffice Apr 2015 OP

I really am sorry for you and your kids. RGinNJ Apr 2015 #1

Thanks RG. DeadLetterOffice Apr 2015 #2

I just read up about it. dixiegrrrrl Apr 2015 #3

We've got the hypermobility subtype. DeadLetterOffice Apr 2015 #4

I had never heard of that until recently when I learned.. 2theleft Apr 2015 #5

I hope the best for you and your kids... Holly_Hobby May 2015 #6

I saw a genetic counselor to diagnose. DeadLetterOffice May 2015 #7

Ok, that makes sense... Holly_Hobby May 2015 #8

Good luck! DeadLetterOffice May 2015 #9

They say a geneticist is the best person to diagnose. I actually did a lot of research on my own Seeinghope Jun 2016 #15

I have not heard of this but I am glad you got a diagnosis. DawgHouse Jun 2015 #10

It really is. DeadLetterOffice Jun 2015 #11

So sorry, DeadLetterOffice. pnwmom Aug 2015 #12

Try not to do the guilt trip DeadLetterOffice Aug 2015 #13

Thanks, DLO pnwmom Aug 2015 #14

I am glad that you finally got a diagnosis. For me it connected all of the dots. Seeinghope Jun 2016 #16

Connected all my dots, too! DeadLetterOffice Jul 2016 #19

The daughter of a friend of mine has one of the variants of this Nac Mac Feegle Jul 2016 #17

I'm sure you mean well. DeadLetterOffice Jul 2016 #18

I have no intention of being condescending. Nac Mac Feegle Jul 2016 #20

Amen. DeadLetterOffice Aug 2016 #24

my daughter's pcp thinks she has this. mopinko Aug 2016 #21

just got dx'd myself Paula Sims Aug 2016 #22

Hypermobile (type 3) DeadLetterOffice Aug 2016 #23