And yeah, don't take NSAIDs no matter what. I'm scheduled for PRP for my elbow because I've reached my lifetime limit on cortisone injections, but as much as I'd like a handful of Alleve ... No. I tried Clinoril a few years ago, which I used to be able to take safely, and the edema was scary bad. I'm already taking 240mg Lasix/day and I still couldn't get my shoes on.
Anyway. I've had a shit ton of infections, stones, plus the FSGS so I have scarring bad enough to be seen on sonogram so again, being B- with a disease with a ... poor ...prognosis, I've started checking my options. There's the Kamen home dialysis machine, which is hemo and allows daily dialysis, which is best for everything (and no water limit). If that's not an option and you'd still prefer more frequent dialysis, there's peritoneal dialysis which can be done at night or continuously through the day.
I'm sorry I can't be much more use than that. While I'm not at the same stage, I understand the scary and weirdness of it, though I just know the scary and weird I deal with and fear. On the other hand, it's entirely possible you may regain some function - after my last round trying Clinoril, things looked pretty grim but my function did recover from full-on Stage III to borderline II/III, where I'd been for a while.
Good luck and best wishes. And yeah, it sucks. But I bet it'll get at least a little better 
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